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Stomatologija 2019; 21 (3): 72-8 513 KB

Application of a new patient-reported outcome measure in orofacial clefts: An exploratory study in two countries

Van Thai Nguyen^¹, Martin Persson^², Triin Jagomägi^¹

Summary

Patients with repaired cleft lip and/or palate may vary in satisfaction with their treatment. The exploratory study investigated the satisfaction of patients with orofacial clefts, and their parents with cleft treatment outcomes using the Cleft Hearing, Appearance and Speech Questionnaire (CHASQ). The study included 29 Vietnamese and 27 Estonian patients aged ≥ 7 years with repaired cleft lip and/or palate. The CHASQ was translated into Vietnamese and Estonian. The questionnaire was completed independently by patients and their parents. There were nine items in the CHASQ associated with the cleft (Factor 1) and six items less associated with the cleft (Factor 2). Significant moderate positive correlations were related to Factor 1. Vietnamese patients self-rated lower than Estonian patients in most of the items except speech. The agreement between patients and parents varied from low to moderate positive correlations in the features associated with the cleft, and mainly in the Vietnam sample. Vietnamese patients were less satisfied than Estonian patients. CHASQ is an easy tool to evaluate patients’ satisfaction with hearing, appearance, and speech.

Key words: cleft lip, cleft palate, patient satisfaction, speech, treatment outcome.

Received: 10 06 2019

Accepted for publishing: 20 09 2019

¹Institute of Dentistry, University of Tartu, Tartu, Estonia

²Faculty of Health Science, Kristianstad University, Kristianstad, Sweden

Address correspondence to Van Thai Nguyen, DDS, PhD. Institute of Dentistry, Raekoja plats 6, Tartu 51003, Estonia. E-mail: thai.nguyen.van@ut.ee



	Baltic Dental and Maxillofacial Journal

September, 2019, Vol. 21, No. 3 CONTENTS REVIEWS Testing of Lithuanian version of the Oral Health Impact Profile-14 among older adults. A Pilot study Mantė Kireilytė, Viltė Masiliūnaitė, Vilma Belickienė, Juozas Žilinskas, Žana Sakalauskienė 67-71 SCIENTIFIC ARTICLES Application of a new patient-reported outcome measure in orofacial clefts: An exploratory study in two countries Van Thai Nguyen, Martin Persson, Triin Jagomägi 72-78 Rugae patterns as an adjunct to sex differentiation in forensic identification Rahul Gaikwad, Seema Kamble, Ritwik Rana, Swapnil Jain, Shailesh Gondivkar, Payal Bajad 79-82 Epidemiology of primary oral cancer diagnostics among dentists and physicians in Lithuania Rokas Gelažius, Albinas Gervickas, Žygimantas Petronis, Eglė Vaičiūnaitė 83-91 CASE REPORT A rare case of long-standing mucoepidermoid carcinoma of minor salivary glands of the palate Sajad Ahmad Buch, G. Subhas Babu, Renita Lorina Castelino, Shruthi Rao, Kumuda Rao 92-96 © 2019 Stomatologija		Stomatologija 2019; 21 (3): 72-8 513 KB Application of a new patient-reported outcome measure in orofacial clefts: An exploratory study in two countries Van Thai Nguyen^¹, Martin Persson^², Triin Jagomägi^¹ Summary Patients with repaired cleft lip and/or palate may vary in satisfaction with their treatment. The exploratory study investigated the satisfaction of patients with orofacial clefts, and their parents with cleft treatment outcomes using the Cleft Hearing, Appearance and Speech Questionnaire (CHASQ). The study included 29 Vietnamese and 27 Estonian patients aged ≥ 7 years with repaired cleft lip and/or palate. The CHASQ was translated into Vietnamese and Estonian. The questionnaire was completed independently by patients and their parents. There were nine items in the CHASQ associated with the cleft (Factor 1) and six items less associated with the cleft (Factor 2). Significant moderate positive correlations were related to Factor 1. Vietnamese patients self-rated lower than Estonian patients in most of the items except speech. The agreement between patients and parents varied from low to moderate positive correlations in the features associated with the cleft, and mainly in the Vietnam sample. Vietnamese patients were less satisfied than Estonian patients. CHASQ is an easy tool to evaluate patients’ satisfaction with hearing, appearance, and speech. Key words: cleft lip, cleft palate, patient satisfaction, speech, treatment outcome. Received: 10 06 2019 Accepted for publishing: 20 09 2019 ¹Institute of Dentistry, University of Tartu, Tartu, Estonia ²Faculty of Health Science, Kristianstad University, Kristianstad, Sweden Address correspondence to Van Thai Nguyen, DDS, PhD. Institute of Dentistry, Raekoja plats 6, Tartu 51003, Estonia. E-mail: thai.nguyen.van@ut.ee